Tuesday Morning
I dressed in my favorite pink born flip-flop wedges and a hot shirt and jeans I snagged from Plato's Closet. They can't give me bad news if I look hot, right?
This morning we go get a brain MRI in Fort Collins, then to Denver to get the summation of the tumor board which will be meeting this morning. My hope is that we will have a plan for treatment at the end of that appointment.
The weekend was tumultuous, but there were plenty of times I just felt like normal, which is such a mercy.
As you've all been waiting, here is me and my bike. These aren't really flattering, but you're gonna LOVE the bike
Also, on Saturday, my friend Dana, who I've known probably longer than anyone other than my own family, came up with her four daughters. It was hilarious to watch eight little girls in the back yard playing "Toilet Tag"--who knew? She and her husband Bob and their girls have had a journey of a lifetime--their fourth daughter Emersyn, who is now four, was born with Loeys-Dietz syndrome (LDS), a genetic disorder that affects the connective tissue in the body. Their story is amazing and fascinating. Emersyn just had a successful Valve Sparing Aortic Root Replacement surgery and they closed her PDA valve--basically, one gigantic, big-ass heart surgery. She was out of the hospital in just four days (!). You can read more about her journey, and give to the fund helping Bob and Dana and the girls at www.emmysjourney.com
Here's photos of all those girls playing Toilet Tag and Red Rover.
This morning we go get a brain MRI in Fort Collins, then to Denver to get the summation of the tumor board which will be meeting this morning. My hope is that we will have a plan for treatment at the end of that appointment.
The weekend was tumultuous, but there were plenty of times I just felt like normal, which is such a mercy.
As you've all been waiting, here is me and my bike. These aren't really flattering, but you're gonna LOVE the bike
Also, on Saturday, my friend Dana, who I've known probably longer than anyone other than my own family, came up with her four daughters. It was hilarious to watch eight little girls in the back yard playing "Toilet Tag"--who knew? She and her husband Bob and their girls have had a journey of a lifetime--their fourth daughter Emersyn, who is now four, was born with Loeys-Dietz syndrome (LDS), a genetic disorder that affects the connective tissue in the body. Their story is amazing and fascinating. Emersyn just had a successful Valve Sparing Aortic Root Replacement surgery and they closed her PDA valve--basically, one gigantic, big-ass heart surgery. She was out of the hospital in just four days (!). You can read more about her journey, and give to the fund helping Bob and Dana and the girls at www.emmysjourney.com
Here's photos of all those girls playing Toilet Tag and Red Rover.
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